Schedule

2026 Cherokee Nation
Rare Disease Summit

Wednesday, October 7th
9:00 a.m. – 9:45 a.m. Central	Registration & Breakfast Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
9:45 a.m. - 10:15 a.m. Central	Opening Remarks Canaan Duncan – Deputy Secretary of State Chuck Hoskin Jr. – Principal Chief Bryan Warner – Deputy Principal Chief Beth Harp, DO, MHA – Chief Medical Officer Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
10:15 a.m. – 11:00 a.m. Central	Keynote Address What is Rare Disease? Prevalence, Population Impact, and Why It Matters Sydney Martinez, PhD, MPH Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
11:00 a.m. – 11:15 a.m. Central	Break
11:15 a.m. – 12:15 p.m. Central	Lunch Cherokee Nation Outpatient Health Center (CNOHC) Conference Room ABC Resource Fair Cherokee Nation Outpatient Health Center (CNOHC) Community Room Hallways
12:15 p.m. – 1:00 p.m. Central	Breakout Session Rare Disease Empowerment & Advocacy Leah Campbell & Sky Collins Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
12:15 p.m. – 1:00 p.m. Central	Breakout Session Food as Medicine Marianna Wetherill, PhD, MPH, RDN/LD, DipACLM Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
12:15 p.m. – 1:00 p.m. Central	Breakout Session Oklahoma Newborn Screening Program Shari Arceneaux, RN Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
1:00 p.m. – 1:15 p.m. Central	Break
1:15 p.m. – 2:00 p.m. Central	Breakout Session Navigating Rare Disease Healthcare Lacy Eidson, BSN, RN and Renee Botts, RN Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
1:15 p.m. – 2:00 p.m. Central	Breakout Session Genetics and Rare Disease Danielle DeMarzo-Burdsall, MD, FACMG Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
1:15 p.m. – 2:00 p.m. Central	Breakout Session Neurology Rare Disease Smaranda Galis, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
2:00 p.m. – 2:15 p.m. Central	Break
2:15 p.m. – 3:00 p.m. Central	Breakout Session Nutrition for Rare Disease Management Tonya Swim, MBA, RD/LD Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
2:15 p.m. – 3:00 p.m. Central	Breakout Session Reversing Systemic Inflammatory Diseases with Intense Lifestyle Medicine Prashant Kaushik, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
2:15 p.m. – 3:00 p.m. Central	Breakout Session Pediatric Hematology/Oncology Rare Disease Meagan McCall, DO Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
3:00 p.m. – 3:15 p.m. Central	Break
3:15 p.m. – 3:45 p.m. Central	Closing Plenary Speaker Q&A Panel Moderated by Dr. Beth Harp, DO (Chief Medical Officer) Panel TBD Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC