Schedule

2025 Cherokee Nation
Rare Disease Summit

Thursday, June 12
8:00 a.m. – 9:00 a.m. Central	Registration & Breakfast Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
9:00 a.m. – 9:15 a.m. Central	Welcome and Opening Remarks Beth Harp, DO, MHA – Chief Medical Officer Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
9:15 a.m. – 10:15 a.m. Central	Rare Disease Advocacy Alexandria Price Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
10:20 a.m. - 11:20 a.m. Central	Opening Remarks Canaan Duncan – Deputy Secretary of State Chuck Hoskin Jr. – Principal Chief Bryan Warner – Deputy Principal Chief Mike Shambaugh - Tribal Council Speaker-District 9 Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
11:20 a.m. – 12:20 p.m. Central	Lunch Cherokee Nation Outpatient Health Center (CNOHC) Conference Room ABC Resource Fair Cherokee Nation Outpatient Health Center (CNOHC) Community Room Hallways
12:30 p.m. – 1:30 p.m. Central	Breakout Session Newborn & Rare Disease Screening Program Jennifer Baysinger, MSN, RN Cherokee Nation Outpatient Health Center (CNOHC) Conference Room
12:30 p.m. – 1:30 p.m. Central	Breakout Session Building Partnerships to Optimize Cystic Fibrosis Care in Children and Adults Joseph Walter, MD & Amy Hendrix-Dicken, PhD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
12:30 p.m. – 1:30 p.m. Central	Breakout Session Genetic Testing for Epilepsies James Lewis, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
1:30 p.m. – 1:45 p.m. Central	Break
1:45 p.m. – 2:45 p.m. Central	Breakout Session Mental Health in the Perinatal Period Leah Meyer, MS, LPC, PMH-C Cherokee Nation Outpatient Health Center (CNOHC) Conference Room
1:45 p.m. – 2:45 p.m. Central	Breakout Session Rare Genetic Variants and their role in Diabetes and Vascular Diseases Dharambir Sanghera, PhD, FAHA Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
1:45 p.m. – 2:45 p.m. Central	Breakout Session Pediatric Neurovascular Disease Michael Feldman, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
2:45 p.m. – 3:00 p.m. Central	Break
3:00 p.m. – 4:00 p.m. Central	Breakout Session Ehlers Danlos Syndrom Shirliejean Raven Arnold, APRN-CNP Cherokee Nation Outpatient Health Center (CNOHC) Conference Room
3:00 p.m. – 4:00 p.m. Central	Breakout Session Spina Bifida and Chiari Naina Gross, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
3:00 p.m. – 4:00 p.m. Central	Breakout Session Newborn & Rare Disease Screening Program Jennifer Baysinger, MSN, RN Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
4:00 p.m. – 4:30 p.m. Central	Break
4:30 p.m. – 5:00 p.m. Central	Closing Plenary Speaker Q&A Panel Moderated by Beth Harp, DO (Chief Medical Officer) Panel Michael Feldman, MD Naina Gross, MD Dharambir Sanghera, PhD, FAHA Joseph Walter, MD James Lewis, MD Prashant Kaushik, MD (Virtual) Shirliejean Raven Arnold, APRN-CNP Jennifer Baysinger, MSN, RN Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC