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Schedule

 

Thursday, June 12
8:00 a.m. – 9:00 a.m. Central Registration & Breakfast

Cherokee Nation Outpatient Health Center
(CNOHC) Community Room ABC
9:00 a.m. – 9:15 a.m. Central

Welcome and Opening Remarks
Beth Harp, DO, MHA – Chief Medical Officer

Cherokee Nation Outpatient Health Center
(CNOHC) Community Room ABC

9:15 a.m. – 10:15 a.m. Central

Rare Disease Experience and Advocacy
Melissa Bryce

Cherokee Nation Outpatient Health Center (CNOHC)
Community Room ABC

10:20 a.m. - 11:20 a.m. Central Opening Remarks
Canaan Duncan – Deputy Secretary of State
Chuck Hoskin Jr. – Principal Chief
Bryan Warner – Deputy Principal Chief
January Hoskin – First Lady

Cherokee Nation Outpatient Health Center (CNOHC)
Community Room ABC
11:20 a.m. – 12:20 p.m. Central Lunch
Cherokee Nation Outpatient Health Center (CNOHC)
Conference Room ABC
Resource Fair
Cherokee Nation Outpatient Health Center (CNOHC)
Community Room Hallways
12:30 p.m. – 1:30 p.m. Central

Breakout Session
Newborn & Rare Disease Screening Program

Jennifer Baysinger, MSN, RN

Cherokee Nation Outpatient Health Center (CNOHC)
Conference Room ABC

12:30 p.m. – 1:30 p.m. Central

Breakout Session
Building Partnerships to Optimize Cystic Fibrosis Care in Children and Adults

Joseph Walter, MD & Amy Hendrix-Dicken, PhD

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 1

12:30 p.m. – 1:30 p.m. Central

Breakout Session
Patient Work Up and Causes of Epilepsy

James Lewis, MD

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 3

1:30 p.m. – 1:45 p.m. Central Break
1:45 p.m. – 2:45 p.m. Central

Breakout Session
MPS Hurler Syndrome

Alex Price

Cherokee Nation Outpatient Health Center (CNOHC)
Conference Room ABC

1:45 p.m. – 2:45 p.m. Central

Breakout Session
Rare Genetic Variants and their role in Diabetes and Vascular Diseases

Dharambir Sanghera, PhD, FAHA

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 1

1:45 p.m. – 2:45 p.m. Central

Breakout Session
Pediatric Neurovascular Disease

Michael Feldman, MD

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 3

2:45 p.m. – 3:00 p.m. Central Break
3:00 p.m. – 4:00 p.m. Central

Breakout Session
TBA

Speaker TBA

Cherokee Nation Outpatient Health Center (CNOHC)
Conference Room ABC

3:00 p.m. – 4:00 p.m. Central

Breakout Session
Spina Bifida and Chiari

Naina Gross, MD

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 1

3:00 p.m. – 4:00 p.m. Central

Breakout Session
Newborn & Rare Disease Screening Program

Jennifer Baysinger, MSN, RN

Oklahoma State University Center for Health Sciences at Cherokee Nation
Lecture Hall – Floor 3

4:00 p.m. – 4:30 p.m. Central Break
4:30 p.m. – 5:00 p.m. Central

Closing Plenary
Speaker Q&A Panel

 Moderated by Beth Harp, DO (Chief Medical Officer)
Panel
Dr. Kaushik (Virtual), Jennifer Baysinger
Dr. Gross, Dr. Feldman
Dr. Walter, Dr. Lewis, Melissa Bryce

Cherokee Nation Outpatient Health Center (CNOHC)
Community Room ABC