Register

United for Hope, Empowering through Knowledge:
Bringing Rare Diseases to Light in Cherokee Nation

Register

Conference Date

Count Every Second
Until the Event

June 12, 2025 8:00 am (CT)

Days

Hours

Minutes

Seconds

About the Summit

Cherokee Nation Health Services is hosting a Rare Disease Summit, bringing together specialty physicians, healthcare professionals, and community members to address rare diseases affecting our tribal citizens.

This event will cover key medical topics and some classified rare diseases. Attendees will have the opportunity to engage with experts through a Q&A panel featuring a neurology specialist, fostering open discussions and deeper insights. Our goal is to raise awareness and enhance support for rare diseases that impact our reservation and the wider Cherokee Nation.

Register Now

Who’s speaking

Principal Chief Chuck Hoskin Jr.
Principal Chief of the Cherokee Nation
Deputy Principal Chief Bryan Warner
Deputy Principal Chief of the Cherokee Nation
January Hoskin
First Lady of the Cherokee Nation
Canaan Duncan
Deputy Secretary of State
Dr. Beth Harp, MD
DO Health Services Executive Medical Director
Melissa Bryce
Melissa Bryce
Alexandria Price
Alexandria Price, MPS
Michael Feldman
Michael Feldman, M.D.
Naina Gross
Naina Gross, MD
Dharambir K. Sanghera
Dr. Dharambir K. Sanghera, Ph.D., F.A.H.A.
Joseph Walter
Dr. Joseph Walter, MD
Amy Hendrix-Dicken
Dr. Amy Hendrix-Dicken, PhD
James Lewis
Dr. James Lewis, MD
Dr. Prashant Kaushik, MD
Specialty: Rhematology
Jennifer Baysinger
Jennifer Baysinger, MSN, RN

Our Schedule

Registration & Breakfast

  • 8:00 am - 9:00 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Welcome and Opening Remarks

  • Beth Harp, DO, MHA – Chief Medical Officer.
  • 9:00 am - 9:15 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Rare Disease Experience and Advocacy

  • Melissa Bryce
  • 9:15 am - 10:15 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Opening Remarks

  • Canaan Duncan – Deputy Secretary of State
  • Chuck Hoskin Jr. – Principal Chief
  • Bryan Warner – Deputy Principal Chief
  • January Hoskin – First Lady
  • 10:20 am - 11:20 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Lunch

  • 11:20 am - 12:20 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Resource Fair

  • 11:20 am - 12:20 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) CNOHC End of Hallway

Breakout Session

Newborn & Rare Disease Screening Program

  • Jennifer Baysinger, MSN, RN
  • 12:30 pm - 1:30 pm
  • Cherokee Nation Outpatient Center (CNOHC) Community Room ABC

Breakout Session

Building Partnerships to Optimize Cystic Fibrosis Care in Children and Adults

  • Joseph Walter, MD
  • Amy Hendrix-Dicken, PhD
  • 12:30 pm - 1:30 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Patient Work Up and Causes of Epilepsy

  • James Lewis, MD
  • 12:30 pm - 1:30 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 1:30 pm - 1:45 pm

Breakout Session

MPS Hurler Syndrome

  • Alex Price
  • 1:45 pm - 2:45 pm
  • Cherokee Nation Outpatient Center (CNOHC) Community Room ABC

Breakout Session

Rare Genetic Variants and their role in Diabetes and Vascular Diseases

  • Dharambir Sanghera, PhD, FAHA
  • 1:45 pm - 2:45 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Vascular Disease/Strokes/AVMs

  • Michael Feldman, MD
  • 1:45 pm - 2:45 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 2:45 pm - 3:00 pm

Breakout Session

TBA

  • Speaker TBA
  • 3:00 pm - 4:00 pm
  • Cherokee Nation Outpatient Center (CNOHC) Community Room ABC

Breakout Session

Spina Bifida and Chiari

  • Naina Gross, MD
  • 3:00 pm - 4:00 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Newborn & Rare Disease Screening Program

  • Jennifer Baysinger, MSN, RN
  • 3:00 pm - 4:00 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 4:00 pm - 4:30 pm

Closing Plenary

Speaker Q&A Panel

  • Moderated by Beth Harp, DO (Chief Medical Officer)
  • Panel - Dr. Kaushik (Virtual)
  • Panel - Jennifer Baysinger
  • Panel - Dr. Gross
  • Panel - Dr. Feldman
  • Panel - Dr. Walter
  • Panel - Dr. Lewis
  • Panel - Dr. Sanghera
  • Panel - Melissa Bryce
  • 4:30 pm - 5:00 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Location

Address:

19600 E Ross St. Tahlequah, OK
United States

  • Phone: (539) 234-2273
  • Email: cherokeerdsummit@cherokee.org
Website:

cherokeerdsummit.com