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United for Hope, Empowering through Knowledge:
Bringing Rare Diseases to Light in Cherokee Nation

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Conference Date

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Until the Event

June 12, 2025 8:00 am (CT)

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About the Summit

Cherokee Nation Health Services is hosting a Rare Disease Summit, bringing together specialty physicians, healthcare professionals, and community members to address rare diseases affecting our tribal citizens.

This event will cover key medical topics and some classified rare diseases. Attendees will have the opportunity to engage with experts through a Q&A panel featuring a neurology specialist, fostering open discussions and deeper insights. Our goal is to raise awareness and enhance support for rare diseases that impact our reservation and the wider Cherokee Nation.

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Who’s speaking

Principal Chief Chuck Hoskin Jr.
Principal Chief of the Cherokee Nation
Deputy Principal Chief Bryan Warner
Deputy Principal Chief of the Cherokee Nation
Canaan Duncan
Deputy Secretary of State
Dr. Beth Harp, MD
DO Health Services Executive Medical Director
Alexandria Price
Rare Disease Advocate
Michael Feldman, MD
Pediatric Neurosurgeon
Naina Gross, MD
Pediatric Neurosurgeon
Dharambir K. Sanghera, PhD, FAHA
Professor of Pediatrics
Joseph Walter, MD
Pediatric Pulmonologist
Amy Hendrix-Dicken, PhD
Research Assistant Supervisor
James Lewis, MD
Pediatrician
Prashant Kaushik, MD
Rheumatologist
Jennifer Baysinger, MSN, RN
Registered Nurse
Mike Shambaugh
Tribal Council Speaker-District 9
Shirliejean Raven Arnold, APRN-CNP
Nurse Practitioner

Our Schedule

Registration & Breakfast

  • 8:00 am - 9:00 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Welcome and Opening Remarks

  • Beth Harp, DO, MHA – Chief Medical Officer.
  • 9:00 am - 9:15 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Rare Disease Advocacy

  • Alexandria Price
  • 9:15 am - 10:15 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Opening Remarks

  • Canaan Duncan – Deputy Secretary of State
  • Chuck Hoskin Jr. – Principal Chief
  • Bryan Warner – Deputy Principal Chief
  • Mike Shambaugh - Tribal Council Speaker-District 9
  • 10:20 am - 11:20 am
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Lunch

  • 11:20 am - 12:20 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Resource Fair

  • 11:20 am - 12:20 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) CNOHC End of Hallway

Breakout Session

Newborn & Rare Disease Screening Program

  • Jennifer Baysinger, MSN, RN
  • 12:30 pm - 1:30 pm
  • Cherokee Nation Outpatient Center (CNOHC) Conference Room

Breakout Session

Building Partnerships to Optimize Cystic Fibrosis Care in Children and Adults

  • Joseph Walter, MD
  • Amy Hendrix-Dicken, PhD
  • 12:30 pm - 1:30 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Genetic Testing for Epilepsies

  • James Lewis, MD
  • 12:30 pm - 1:30 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 1:30 pm - 1:45 pm

Breakout Session

Mental Health in the Perinatal Period

  • Leah Meyer, MS, LPC, PMH-C
  • 1:45 pm - 2:45 pm
  • Cherokee Nation Outpatient Center (CNOHC) Conference Room

Breakout Session

Rare Genetic Variants and their role in Diabetes and Vascular Diseases

  • Dharambir Sanghera, PhD, FAHA
  • 1:45 pm - 2:45 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Pediatric Neurovascular Disease

  • Michael Feldman, MD
  • 1:45 pm - 2:45 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 2:45 pm - 3:00 pm

Breakout Session

Ehlers Danlos Syndrom

  • Shirliejean Raven Arnold, APRN-CNP
  • 3:00 pm - 4:00 pm
  • Cherokee Nation Outpatient Center (CNOHC) Conference Room

Breakout Session

Spina Bifida and Chiari

  • Naina Gross, MD
  • 3:00 pm - 4:00 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1

Breakout Session

Newborn & Rare Disease Screening Program

  • Jennifer Baysinger, MSN, RN
  • 3:00 pm - 4:00 pm
  • Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3

Break

  • 4:00 pm - 4:30 pm

Closing Plenary

Speaker Q&A Panel

  • Moderated by Beth Harp, DO (Chief Medical Officer)
  • Panel - Michael Feldman, MD
  • Panel - Naina Gross, MD
  • Panel - Dharambir Sanghera, PhD, FAHA
  • Panel - Joseph Walter, MD
  • Panel - James Lewis, MD
  • Panel - Prashant Kaushik, MD (Virtual)
  • Panel - Shirliejean Raven Arnold, APRN-CNP
  • Panel - Jennifer Baysinger, MSN, RN
  • 4:30 pm - 5:00 pm
  • Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC

Location

Address:

19600 E Ross St. Tahlequah, OK
United States

  • Phone: (539) 234-2273
  • Email: cherokeerdsummit@cherokee.org
Website:

cherokeerdsummit.com